About us
Our aim is to provide practical advice and support, create a sense of community among affected families and to promote research of benefit to people suffering from LFS.
Our story.
The George Pantziarka TP53 Trust is the UK’s only charity dedicated to supporting individuals and families suffering from Li Fraumeni Syndrome (LFS) or related conditions (such as Li Fraumeni-like Syndrome).
It was established by the family of George Pantziarka, who suffered from LFS, and who died in on 25th April 2011 from his third cancer. It was only after he had been diagnosed with the last cancer that George was gene tested and found to have LFS.
At the time of George’s diagnosis, there were no organisations offering help or support specifically for people with LFS. After his death, George’s family decided to change this, and The George Pantziarka TP53 Trust was formed in 2012.
In the years since the Trust was established, it has expanded its influence considerably, with involvement in research, in health policy decisions and building relationships with medical professionals. We provide practical advice and support and aim to create a sense of community among affected families. We hold an annual conference to which people with LFS and their families are invited, along with researchers and clinicians.
How we started.
The Trust was established by the family of George Pantziarka, who suffered from Li Fraumeni Syndrome (LFS), and who died on 25th April 2011 after suffering from his third cancer.
It was only after George had been diagnosed with his third cancer that he was tested and found to be suffering from LFS. The George Pantziarka Trust is currently the only organisation devoted to LFS and related conditions in the UK.