Newsletter #3
Molly McQueen, with her mum Katie, organised a spectacular charity ball in Kilmarnock, Scotland to...
Blog
Our aim is to provide practical advice and support, create a sense of community among affected families and to promote research of benefit to people suffering from LFS.
Blog Archieve
Newsletter #2
As we kick off this quarter's newsletter, there's really only one place we can start.
SPAGN – Joining Sarcoma Patients Globally
Sarcomas are some of the ‘core’ cancers associated with Li Fraumeni Syndrome
Newsletter #1
The long-awaited MILI (Metformin In Li Fraumeni Syndrome) trial is almost ready to start recruiting!
SIGNIFIED
As has been repeatedly shown in studies, including the UK SIGNIFY study in 2017
ON-HOLD – New Update Due Soon!
LiFTS: Li Fraumeni over Time Study – tracking changes in LFS over time
FOSTERing change in Osteosarcoma
Osteosarcoma is the most common of the bone cancers affecting children and adolescents
MILI Trial – Funding Approved!
Our charity is named in honour of George Pantziarka, who sadly passed away in 2011....
Arsenic Trioxide for Li Fraumeni Syndrome?
Having a mutated TP53 gene wouldn’t be such an issue if there was a way...
Having a brother or sister with LFS
Having a mutated TP53 gene wouldn’t be such an issue if there was a way...
Attitudes to Whole-body MRI
Our charity is named in honour of George Pantziarka, who sadly passed away in 2011....
Clinical Trial – Metformin in Li Fraumeni Syndrome
Having a mutated TP53 gene wouldn’t be such an issue if there was a way...