Newsletter #6
Our eighth annual national conference, was held this year on Saturday September 14th at ISH...
Blog
Our aim is to provide practical advice and support, create a sense of community among affected families and to promote research of benefit to people suffering from LFS.
Blog Archive
Funding for Whole-body MRI On The Way
A lack of access to the recommended screening, particularly annual whole-body (WBMRI) and brain MRI,...
Newsletter #5
The George Pantziarka TP53 Trust was once again happy to mark LFS Awareness Day by...
LFS Register for the UK
We do not know how many people with Li Fraumeni Syndrome (LFS) there are in...
Newsletter #4
The George Pantziarka TP53 Trust was once again happy to mark LFS Awareness Day by...
Liquid Biopsies in LFS – First Results
Early cancer detection is the primary aim in the management of Li Fraumeni Syndrome –...
Online Support Call – Maggie’s Survey
Survey now closed.
Newsletter #3
Molly McQueen, with her mum Katie, organised a spectacular charity ball in Kilmarnock, Scotland to...
Newsletter #2
As we kick off this quarter's newsletter, there's really only one place we can start.
SPAGN – Joining Sarcoma Patients Globally
Sarcomas are some of the ‘core’ cancers associated with Li Fraumeni Syndrome
Newsletter #1
The long-awaited MILI (Metformin In Li Fraumeni Syndrome) trial is almost ready to start recruiting!
SIGNIFIED
As has been repeatedly shown in studies, including the UK SIGNIFY study in 2017