LFS Register for the UK
We do not know how many people with Li Fraumeni Syndrome (LFS) there are in...
Category: Uncategorized
Newsletter #4
The George Pantziarka TP53 Trust was once again happy to mark LFS Awareness Day by...
Website Survey
We are interested in your feedback on our website - we want to use this...
Liquid Biopsies in LFS – First Results
Early cancer detection is the primary aim in the management of Li Fraumeni Syndrome –...
Online Support Call – Maggie’s Survey
Survey now closed.
Newsletter #3
Molly McQueen, with her mum Katie, organised a spectacular charity ball in Kilmarnock, Scotland to...
Newsletter #2
As we kick off this quarter's newsletter, there's really only one place we can start.
SPAGN – Joining Sarcoma Patients Globally
Sarcomas are some of the ‘core’ cancers associated with Li Fraumeni Syndrome
Newsletter #1
The long-awaited MILI (Metformin In Li Fraumeni Syndrome) trial is almost ready to start recruiting!
SIGNIFIED
As has been repeatedly shown in studies, including the UK SIGNIFY study in 2017
ON-HOLD – New Update Due Soon!
LiFTS: Li Fraumeni over Time Study – tracking changes in LFS over time
FOSTERing change in Osteosarcoma
Osteosarcoma is the most common of the bone cancers affecting children and adolescents